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About POLA

About POLA
Team
Reports, recommendations, studies
Slides from seminars and events
Membership
Projects
POLA volunteers

Lithuanian Cancer Patient Coalition (POLA) is one of the largest umbrella non-governmental organizations in Lithuania, bringing together 30 patient organizations and more than 17 000 oncology patients.

In its activities, POLA represents and protects the interests of oncological patients in public authorities and in various areas of public policy making. Furthermore, POLA offers a wide range of services such as psychological or legal assistance, an assessment of possible treatment alternatives, as well as from nearly 100 discounts and free services from POLA partners.

The initiative to bring together the Lithuanian Cancer Patient Coalition was launched in 2009 but came into force in 2012 to ensure that patients with oncological diseases receive more effective treatment, psychological, emotional and social support, as well as all the information they need. Throughout these years, POLA has become one of the most recognizable non-governmental organizations in the country, representing the interests of oncology patients, both at the political and public levels.

Paulius Rakštys
Vice President. Acting President of POLA since 25th of 2020 of July
Richard Cervin
Member of the Board
Aurimas Pečkauskas
Member of the Board
Jurga Misevičienė
Member of the Board
Justina Gustė
Member of the Board
Nedas Šinkūnas
Member of the Board
Šarūnas Narbutas
Temporarily resigned as President of POLA until the end of 2020
TEAM
Neringa Čiakienė
Director
Jolita Vyšniauskienė
POLA Card Project Leader
Irena Švedienė
POLA Community Coordinator
FAUSTA ŠIMONĖLYTĖ
Legal Counsel
Agnė Švainickienė
Project Manager
Jūratė Tamošaitytė
The administrator of POLA projects
Jūratė Povilavičienė
Project Coordinator
Kornelija Kunigonytė
Communications Coordinator
Paulius Povilionis
POLA Register and Events Coordinator in Kaunas
Guoda Gudelytė
POLA Home Coordinator
Virginija Kazlauskienė
Ambassador of the POLA Card in Vilnius
AURELIJA LILI VAŠKEVIČIENĖ
Ambassador of the POLA Card in Kaunas

Our annual reports are available in Lithuanian via here.

POLA recommendations, studies and position papers (in Lithuanian):

POLA event and training materials (in Lithuanian)

International Conference “Ways to Improve the Efficiency of the Health System”

How to improve cooperation between doctor and patient? (Part III)

How to improve cooperation between doctor and patient? (Part II)

How to improve cooperation between doctor and patient? (Part I)

When are we going to stop giving bribes to the health system?

Rational use of medicines

Challenges in ‘end-of-life’ issues in health care

Problems and solutions of oncology patients

Communication in achieving organization’s objectives

Communication in representation of the interests of patients

How to improve communication between the doctor and the patient

Video of professor Robert J. Thomas’s 2017-04-05 lecture to patients with translation to Lithuanian

Currently, POLA brings together 30 organizations that play an active role in the area of cancer support.

Don't stay alone!

Once faced with a diagnosis of cancer, a person tends to close himself, not to share his experiences and fears with others. However, this does not help to recover, but only complicates the psychological condition of the sufferer, leading to depression and more frustration. At this point, psychological support and support from anyone aside is very important. In the opinion of specialists, family relationships, communication with people of similar diagnosis in psychological self-help groups are very important for patients with oncological diseases.

POLA invites people of similar destiny to form communities – patient societies and to overcome oncological disease together.

In this section you will find contacts of non-governmental organizations already operating in Lithuania, if you cannot find any near you, we will advise and help you to gather a community in your region.

POLA’s list of actual members
  1. Lithuanian Association of Patients with Prostate Cancer
     www.prostatosvezys.lt
  2. Šiauliai City Women’s Breast Pathology Association “SALVIA”
    nijole963@gmail.com
  3. Lithuanian Society of Brain Tumor Patients and Their Caregivers
    Lina.Piliciauskiene@kaunoklinikos.lt
  4. Birštonas Oncology Club “Viltis gyventi”
    naslenaiteveronika@gmail.com
  5. Elektrėnai  Health Society “Mes Esame”
    elektrenuziburiai@gmail.com
  6. “Viva Femina” Society of Women with Oncological Diseases in Šilutė District
    rodanabaldai@gmail.com
  7. “EIVENA”Society of Women with Oncological Diseases
    eivena.info@gmail.com
  8. Society of Colorectal Cancer Patients
    v.gudiskiene@spcentras.lt
  9. Plunge Association of Oncological Diseases “Mano lemtis”
    rjonikiene@gmail.com
  10. Charity and Support Fund “Mamų unija”
    www.mamuunija.lt
  11. Public institution “Virtus LT”
    www.iveikliga.lt
  12. Public institution “Inkocentras”
    www.buksausas.lt
  13. Public institution “Bene esse”
    www.onkopsichologas.lt
  14. Public institution “Šiauliai Palliative Care and Care Centre”
    www.siauliuslauga.lt
  15. Public institution “Vita Digna”
    www.vitadigna.lt
  16. Public institution “Patient Psychological Support Centre”
    lpppagalboscentras@gmail.com
  17. Association “Aušvis”
    www.ausvis.lt
  18. Charity and Support Fund “Pagalbos namuose tarnyba”
    lc.slauga@gmail.com
  19. Association “Onkologinė savipagalba Lazdijuose”
    dale.pupininkaite@gmail.com
  20. Vilkaviškis Cancer Patients Association “Viltis”
    vilkaviskis.viltis@gmail.com
  21. Marijampolė Cancer Patients Association “Rūpestėlis”
    irena.mikalaviciene@gmail.com
  22. Jurbark Cancer Patients Association “JOLA”
    jola.jurbarkas@gmail.com
  23. Utena Cancer Patients Association “Vilties kelias”
    stanislavamickeviciene@gmail.com
  24. Jonavos Cancer Patients Association 
    jpovilaviciene7@gmail.com
  25. Association “Onkologinės ligos draugas”
    stela.rimova@gmail.com
  26. Ukmergė Cancer Patients Association “Uola”
    akpiestiniai@gmail.com
  27. Rokiškis Cancer Patients Association “Vilties žybsnis”
    dangeko@gmail.com
  28. Mažeikiai Cancer Patients Association “Sveik Veik”
    rasiuxa@gmail.com
  29. Raseiniai Cancer Patients Association “Versmė” 
  30. Panevėžys Cancer Patients Association “Myliu gyvenimą”   d.golciene@gmail.com
What opportunities does membership in POLA offer?

Any non-governmental or public organization providing assistance to people with oncological diseases and their families, can become amember of POLA.

WHY IT IS WORTH IT

As a POLA member, you will have the possibility to:

  • Participate in solving burning questions and problems in the area of oncology
  • Influence legislative process in the area of oncology. For example, POLA members actively participate in the meetings of Ministry of Health and the Parliament of the Republic of Lithuania.
  • Cooperate and consult with members of association in resolving any issues prominent to the organization.
  • Build connections with other organizations in the area of oncology in Lithuania and abroad. For example, The Macmillan Cancer support, a non-governmental organization based in the United Kingdom, Cancer Choices in the Northern Ireland and the charity fund “The Tiltas Trust”.
  • Participate in events and projects organized by POLA.
  • Use POLA card, which gives you the opportunity to take the advantage of discounts provided by POLA partners and participate in POLA loyalty programs.
  • Be more visible and known both locally and internationally.
  • Besides directly contributing to the common goal of improving the quality of life of oncology patients and their relatives, successfully realize Yourself.
  • Communicate not only on the professional level, but also get to know each other and enjoy leisure time during various events (conferences, seminars, trainings, etc.).

 

While aiming its goals, Lithuanian Cancer Patient Coalition (POLA) is engaged in multiple projects.

Being a relatively young organization, POLA has initiated and successfully implemented the project aimed at translating and producing information materials. The project was made possible with the support of the British Embassy and Vilnius Old Town Rotary Club. For the translation of the “A Parent’s Guide to Children’s Cancer’”and “Understanding Cancer Of Unknown Primary” publications from English to Lithuanian, a cooperation agreement was signed with a British organisation Macmillan Cancer Support.

In June 2014, in the Parliament of Northern Ireland POLA and Cancer Choices, an NGO from Northern Ireland, presented results of their successful cooperation: 8 bilingual leaflets on cancer prevention, which were prepared on the basis of Cancer Research UK’s publications. Later on, the information materials were distributed among POLA members and cancer information centres in Lithuania, where they are freely available to all cancer patients and their families.

Currently, the Coalition also runs the POLA card project. The POLA card project’s goal is to develop a single card for loyalty and discount programmes by POLA and its partners. The latter includes service and
goods suppliers which signed cooperation agreements on services for POLA cardholders. As cardholders, cancer patients will enjoy our partners’ discounts and privileges and participate in their loyalty programmes.

The financial assistance and support for the project was provided by the Tiltas Trust, as well as such companies as Novartis, Roche, Janssen and AbbVie.

Another project, aimed at training of members of cancer patient societies, will be launched in the near future. The aim of the project is to develop competences of cancer patient organizations required to defend cancer patients’ rights through the development of an NGO network.

In terms of future initiatives, POLA will put efforts to develop existing cancer information and support centres and contribute to the establishment of new support centres across Lithuania. The centres are to provide comprehensive information and support to patients, their families and a variety of regional patient support organisations.

Everyone willing to take part in POLA projects is welcome to contact POLA Director Neringa Čiakienė.

Major projects that are currently under way:

EU-funded project “Increasing intolerance to corruption in health care”

EU-funded project “Making it easier to recover together”

EU-funded project “Together against Cancer”

EU-funded project “Making it easier together”

Project “POLA – United against Cancer” funded by the Ministry of Social Security and Labor

Dalia, Vilnius
POLA card volunteer coordinator
Regina, Vilnius
POLA card volunteer
Aušra, Vilnius
POLA card volunteer
Aurima, Vilnius
POLA card volunteer
Rūta, Vilnius
POLA card volunteer
Evelina, Vilnius
POLA card volunteer
Vilija, Vilnius
POLA card volunteer
Gražina, Vilnius
POLA card volunteer
Renata, Vilnius
POLA card volunteer
Miglė, Vilnius
POLA card volunteer
Dalė, Kaunas
POLA card volunteer
Dana, Klaipėda
POLA card volunteer
Rita, Šiauliai
POLA card volunteer
Vida, Šiauliai
POLA card volunteer
Aldona, Marijampolė
POLA card volunteer
Danutė, Mariampolė
POLA card volunteer
Iveta, Vilnius
POLA card volunteer
Evangelina, Vilnius
POLA events volunteer
Irena, Kaunas
POLA consultations volunteer
Livija, Kaunas
POLA consultations volunteer
Irena, Kaunas
POLA consultations volunteer
Genutė, Marijampolė
POLA consultations volunteer
Aldona, Marijampolė
POLA consultations volunteer
Nida, Klaipėda
POLA consultations volunteer
Lina, Klaipėda
POLA consultations volunteer
Brigita, Vilnius
POLA consultations volunteer
Lina, Vilnius
POLA consultations volunteer
Marius, Vilnius
POLA consultations volunteer
Laima, Vilnius
POLAconsultations volunteer
Gražina, Vilnius
POLA consultations volunteer
Jurgita, Vilnius
POLA consultations volunteer
Anora, Panevėžys
POLA consultations volunteer
Asta, Birštonas
POLA card ambassador
Daiva, Biržai
POLA card ambassador
Jovita, Klaipėda
POLA card ambassador
Aldutė, Ukmergė
POLA card ambassador
Aurelija, Kaunas
POLA card ambassador
Daiva, Molėtai
POLA card ambassador
Dalė, Lazdijai
POLA card ambassador
Dalė, Panevėžys
POLA card ambassador
Danguolė, Rokiškis
POLA card ambassador
Kazys, Vilkaviškis
POLA card ambassador
Kristina, Kėdainiai
POLA card ambassador
Kristina, Elektrėnai
POLA card ambassador
Lina, Jurbarkas
POLA card ambassador
Roma, Marijampolė
POLA card ambassador
Nijolė, Šiauliai
POLA card ambassador
Rasa, Mažeikiai
POLA card ambassador
Stanislava, Utena
POLA card ambassador
Daiva, Tauragė
POLA card ambassador
Rimas, Trakai
POLA card ambassador
Virginija, Vilnius
POLA card ambassador
Aušra, Alytus
POLA card volunteer
Lina, Klaipėda
POLA card volunteer
Liudmila, Rokiškis
POLA card volunteer
Monika, Jonava
POLA card volunteer
Sigitas, Klaipėda
POLA card volunteer
Valerijus, Mariampolės
POLA card volunteer
Vitalija, Šiauliai
POLA card volunteer
Ernesta, Pakruojis
POLA card ambassador
Arina, Skuodas
POLA card ambassador